Article
Gaps in Cystic Fibrosis Care Are Associated with Reduced Lung Function in the U.S. Cystic Fibrosis Foundation Patient Registry.
Annals of the American Thoracic Society - 1 Sept 2023
Sears Edmund H, Hinton Alexandra C, Lopez-Pintado Sara, Lary Christine W, Zuckerman Jonathan B
Abstract excerpt
Rationale: Cystic fibrosis (CF) is a genetic disease leading to progressive lung function loss and early mortality. Many clinical and demographic variables are associated with lung function decline, but little is known about the effects of prolonged periods of missed care. Objectives: To determine if missed care in the Cystic Fibrosis Foundation Patient Registry (CFFPR) is associated with decreased lung function...
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