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Article

Development and early-stage evaluation of a patient portal to enhance familial communication about hereditary cancer susceptibility testing: A patient-driven approach.

Health expectations : an international journal of public participation in health care and health policy - 1 Apr 2023

Pollard Samantha, Weymann Deirdre, Loewen Rosalie, Nuk Jennifer, Sun Sophie, Schrader Kasmintan A, Hessels Chiquita, Regier Dean A

Abstract excerpt

INTRODUCTION: Genetic testing for hereditary cancer syndromes (HCSs) can improve health outcomes through cancer risk mitigation strategies. Effective communication between tested individuals and their family members is key to reducing the hereditary cancer burden. Our objective was to develop a patient portal to improve familial communication for patients undergoing HCS genetic testing, followed by an early-phase...

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Identifiers

PMID: 36660874
DOI: 10.1111/hex.13702
PMCID: PMC10010078

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026.

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