Benefit Sharing for Human Genomics Research: Awareness and Expectations of Genomics Researchers in Sub‐Saharan Africa

Abstract excerpt

Benefit sharing is an ethical issue that underscores the need to find a balance between access to genetic resources and the provision of fair benefits in exchange for access. The Human Genome Organisation (HUGO) is one of the few initiatives to have engaged with the topic of benefit sharing in human genomics. However, there is a lack of clarity on what benefit sharing entails in human genomics research and how it...

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