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A deliberative study of public attitudes towards sharing genomic data within NHS genomic medicine services in England

15 Jul 2020

Abstract excerpt

Whole genome (DNA) sequencing is becoming part of routine care healthcare in England. Genomic data are most useful when pooled with other patients' data, meaning that clinicians may need to share data to effectively treat patients. We ran deliberative focus groups to explore views among 44 patients and members of the public about proposals for wider genomic data sharing for clinical care. Participants were...

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PMID: 32664786
DOI: 10.1177/0963662520942132

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