Article
"My Plate is Full": Reasons for Declining a Genetic Evaluation of Hearing Loss.
Journal of genetic counseling - 1 Jun 2018
Lesperance Marci M, Winkler Erin, Melendez Tori L, Yashar Beverly M
Abstract excerpt
The aim of this study was to obtain patient and parent perspectives on genetic evaluation of hearing loss, in order to identify motivators, expectations, and barriers. Three focus groups were conducted following a semi-structured discussion guide, led by an independent moderator. Participants were hearing parents of children with permanent hearing loss or deaf adults. Qualitative content analysis was used to...
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