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The Right to Know and the Right Not to Know Revisited: Part One

1 Jul 2017

Abstract excerpt

Prompted by developments in human genetics, a recurrent bioethical question concerns a person's 'right to know' and 'right not to know' about genetic information held that is intrinsically related to or linked to them. In this paper, we will revisit the claimed rights in relation to two particular test cases. One concerns the rights of the 500,000 participants in UK Biobank (UKB) whose biosamples, already having...

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PMID: 28943969
DOI: 10.1007/s41649-017-0012-1

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