Discover Community Create You

Loading publication...

Noodle always counts identifier-free feature events for service operation. With your permission, Google Analytics can also estimate audience and engagement. Search text, publication identifiers, cookies, IP addresses and browser fingerprints are never included in Noodle's first-party event counters.

Privacy details

Article

A Culture of Understanding: Reflections and Suggestions from a Genomics Research Community Board.

Progress in community health partnerships : research, education, and action - 1 Jan 2017

Kaplan Benjamin, Caddle-Steele Carolyn, Chisholm Gregory, Esmond Warria A, Ferryman Kadija, Gertner Melvin, Goytia Crispin, Hauser Diane, Richardson Lynne D, Robinson Mimsie, Horowitz Carol R

Abstract excerpt

There has been limited community engagement in the burgeoning field of genomics research. In the wake of a new discovery of genetic variants that increase the risk of kidney failure and are almost unique to people of African ancestry, community and clinical leaders in Harlem, New York, formed a community board to inform the direction of related research. The board advised all aspects of a study to assess the...

Read the complete abstract on PubMed

Topics

Share this publication in a Topic to start or enrich a Post.

Share to Black or African American
Share to BRCA gene mutations in cancer

Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

Share to Cooperative Behavior

Share to Ethics in Clinical Research

Share to Genetic Predisposition to Disease

Share to Genomics

Share to New York City

Share to Race, Genetics, and Society

Source

Open in PubMed Open full text

Identifiers

PMID: 28736408
DOI: 10.1353/cpr.2017.0020
PMCID: PMC5830277

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 5 Sept 2026. Manifest publication-graph-cohort-2026-09-05.1.

Source receipt: pubmed, retrieved 5 Sept 2026.

Related research

Semantic proximity does not establish scientific evidence.

Research trail→

Click a neighbor to travelStep 1 · 12 closest

A Culture of Understanding: Reflections and Suggestions from a Genomics Research Community Board.PMID 28736408Read ↗

Race, Genomics and Chronic Disease: What Patients with African Ancestry Have to SaySemantic proximity Read ↗

A framework for enhancing ethical genomic research with Indigenous communitiesSemantic proximity Read ↗

A content analysis of the views of genetics professionals on race, ancestry, and geneticsSemantic proximity Read ↗

A Framework for Promoting Diversity, Equity, and Inclusion in Genetics and Genomics ResearchSemantic proximity Read ↗

Community leaders’ perspectives on engaging African Americans in biobanks and other human genetics initiativesSemantic proximity Read ↗

Sharing results from complex disease genetics studies: a community based participatory research approach.Semantic proximity Read ↗

Am I a control?: Genotype-driven research recruitment and self-understandings of study participants.Semantic proximity Read ↗

An Innovative Training Program for Community Health Workers to Support Engagement of Racial and Ethnic Minorities in Genomics Research and Clinical Programs: a Protocol for the Development of the PREFER (PaRtnEring to build understanding oF gEnomics Responsibly) Training ProgramSemantic proximity Read ↗

Race and ancestry in the age of inclusion: technique and meaning in post-genomic science.Semantic proximity Read ↗

Alaska Native genomic research: perspectives from Alaska Native leaders, federal staff, and biomedical researchersSemantic proximity Read ↗

“I’ve never been asked”: Community perspectives on involvement in genomics researchSemantic proximity Read ↗

Inclusion of Racial and Ethnic Minorities in Genetic Research: Advance the Spirit by Changing the Rules?Semantic proximity Read ↗

⌁Select a neighboring publication to make it the new centre.