Article
Development of an Inflammatory Bowel Disease Research Registry Derived from Observational Electronic Health Record Data for Comprehensive Clinical Phenotyping.
Digestive diseases and sciences - 1 Nov 2016
Anderson Alyce J M, Click Benjamin, Ramos-Rivers Claudia, Babichenko Dmitriy, Koutroubakis Ioannis E, Hartman Douglas J, Hashash Jana G, Schwartz Marc, Swoger Jason, Barrie Arthur M, Dunn Michael A, Regueiro Miguel, Binion David G
Abstract excerpt
BACKGROUND: Inflammatory bowel disease (IBD) is a heterogeneous collection of chronic inflammatory disorders of the digestive tract. Clinical, genetic, and pathological heterogeneity makes it increasingly difficult to translate efficacy studies into real-world practice. Our objective was to develop a comprehensive natural history registry derived from multi-year observational data to facilitate effectiveness and...
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