Article
Research participant interest in primary, secondary, and incidental genomic findings.
Genetics in medicine : official journal of the American College of Medical Genetics - 1 Dec 2016
Loud Jennifer T, Bremer Renee C, Mai Phuong L, Peters June A, Giri Neelam, Stewart Douglas R, Greene Mark H, Alter Blanche P, Savage Sharon A
Abstract excerpt
PURPOSE: To define the frequency with which adult research participants consent to be offered clinically validated research genetic test results (RR) and incidental findings (IF). METHODS: Consents were obtained from 506 adults enrolled in one of three studies within the National Cancer Institute Clinical Genetics Branch's Familial Cancer Research Program. A cross-sectional analysis was performed involving the...
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