Article
How Suitable Are Registry Data for Recurrence Risk Calculations? Validation of Diagnoses on 1,593 Families With Congenital Heart Disease.
World journal for pediatric & congenital heart surgery - 1 Mar 2016
Ellesøe Sabrina Gade, Jensen Anders Boeck, Ängquist Lars Henrik, Hjortdal Vibeke Elisabeth, Larsen Lars Allan, Brunak Søren
Abstract excerpt
BACKGROUND: Congenital heart disease (CHD) occurs in approximately 1% of all live births, and 3% to 8% of these have until now been considered familial cases, defined as the occurrence of two or more affected individuals in a family. The validity of CHD diagnoses in Danish administrative registry data has only been studied previously in highly selected patient populations. These studies identified high positive...
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