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Uptake of health monitoring and disease self‐management in Australian adults with neurofibromatosis type 1: strategies to improve care

17 Jun 2015

Abstract excerpt

Lifelong health monitoring is recommended in neurofibromatosis type 1 (NF1) because of the progressive and unpredictable range of disabling and potentially life-threatening symptoms that arise. In Australia, strategies for NF1 health surveillance are less well developed for adults than they are for children, resulting in inequalities between pediatric and adult care. The aims of this study were to determine the...

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PMID: 26081173
DOI: 10.1111/cge.12627

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