Article
Parental preferences toward genomic sequencing for non-medically actionable conditions in children: a discrete-choice experiment.
Genetics in medicine : official journal of the American College of Medical Genetics - 1 Feb 2018
Lewis Megan A, Stine Alex, Paquin Ryan S, Mansfield Carol, Wood Dallas, Rini Christine, Roche Myra I, Powell Cynthia M, Berg Jonathan S, Bailey Donald B
Abstract excerpt
PurposeApplication of whole-exome and whole-genome sequencing is likely to increase in clinical practice, public health contexts, and research. We investigated how parental preference for acquiring information from genome-scale testing is influenced by the characteristics of non-medically actionable genetic disorders in children, as well as whether the preferences differed by gender and between African-American...
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