Article
Attitudes of parents of children with serious health conditions regarding residual bloodspot use.
Public health genomics - 1 Jan 2014
Nagaraj Chinmayee B, Rothwell Erin, Hart Kimberly, Latimer Seth, Schiffman Joshua D, Botkin Jeffrey R
Abstract excerpt
BACKGROUND/OBJECTIVES: Studies have shown that the general public is supportive of newborn screening (NBS) and supportive of the storage and use of residual bloodspots for quality assurance and biomedical research. However, the attitudes of parents of children with serious health conditions have not been assessed. In this study, we assessed attitudes of parents with children who have phenylketonuria (PKU) and...
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