Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet): case definition in surveillance for childhood-onset Duchenne/Becker muscular dystrophy.

doi:10.1177/0883073810371001

Article

Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet): case definition in surveillance for childhood-onset Duchenne/Becker muscular dystrophy.

Journal of child neurology - 1 Sept 2010

Mathews Katherine D, Cunniff Chris, Kantamneni Jiji R, Ciafaloni Emma, Miller Timothy, Matthews Dennis, Cwik Valerie, Druschel Charlotte, Miller Lisa, Meaney F John, Sladky John, Romitti Paul A

Abstract excerpt

The Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet) is a multisite collaboration to determine the prevalence of childhood-onset Duchenne/Becker muscular dystrophy and to characterize health care and health outcomes in this population. MD STARnet uses medical record abstraction to identify patients with Duchenne/Becker muscular dystrophy born January 1, 1982 or later who resided in 1 of...

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Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet): case definition in surveillance for childhood-onset Duchenne/Becker muscular dystrophy.

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