Article
Maps of beauty and disease: thoughts on genetics, confidentiality, and biological family.
Journal of medical ethics - 1 Aug 2010
Ladd Mary
Abstract excerpt
The author explores the ethics of decision-making and confidentiality in donor insemination through the narrative of her experience having two children with a sperm donor who was later discovered to carry a gene for a serious heart disease, hypertrophic cardiomyopathy. Contrasting individualist and communitarian ethical models, she questions understandings of confidentiality that hamper the construction of a...
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