Article
Patient empowerment in clinical genetics services.
Journal of health psychology - 1 Oct 2008
McAllister Marion, Payne Katherine, Macleod Rhona, Nicholls Stuart, Dian Donnai, Davies Linda
Abstract excerpt
Outcome measurement in clinical genetics is problematic because the patient benefits are difficult to measure. The aim in this qualitative grounded theory study was to develop a theoretical framework describing the patient benefits from using clinical genetics services. Seven focus groups and 19 interviews were conducted with patients, patient group representatives, and health professionals. Data analysis...
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