Article
Establishment of an Australian National Genetic Heart Disease Registry.
Heart, lung & circulation - 1 Dec 2008
Ingles Jodie, McGaughran Julie, Vohra Jitendra, Weintraub Robert G, Davis Andrew, Atherton John, Semsarian Christopher
Abstract excerpt
A National Genetic Heart Disease Registry has recently been established, with the aim to enroll every family in Australia with a genetically determined cardiomyopathy or primary arrhythmic disorder. The Registry seeks to further our understanding of the impact and burden of disease in this population; increase awareness and provide education to health professionals and families; and establish a large cardiac...
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