Article
Results communication and patient education after screening for possible hemochromatosis and iron overload: experience from the HEIRS Study of a large ethnically and linguistically diverse group.
Genetics in medicine : official journal of the American College of Medical Genetics - 1 Nov 2007
Walker Ann P, Tucker Diane C, Hall Mark A, Lohman Kurt, Harrison Helen, Harrison Barbara W, Reiss Jacob, Acton Ronald T, Adams Paul C, Diaz Sharmin, Holup Joan, Thomson Elizabeth, Ellis Shellie D, McLaren Christine E
Abstract excerpt
PURPOSE: We assessed the effectiveness of educational interventions for conveying clinical findings and information about hereditary hemochromatosis (HH) and iron overload (IO) to individuals evaluated clinically after initial screening for HH/IO with serum ferritin (SF) concentration, transferrin saturation (TS), and HFE genotyping. METHODS: A questionnaire mailed to 2300 cases and controls 1 month after a...
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