Article
The impact of privacy protections on recruitment in a multicenter stroke genetics study.
Neurology - 22 Feb 2005
Chen D T, Worrall B B, Brown R D, Brott T G, Kissela B M, Olson T S, Rich S S, Meschia J F
Abstract excerpt
The authors reviewed the recruitment of stroke-affected sibling pairs using a letter-based, proband-initiated contact strategy. The authors randomly sampled 99 proband enrollment forms (Phase 1) and randomly sampled 50 sibling reply cards (Phase 2). The sibling response rate was 30.6%, for a pedigree response rate of 58%. Of the siblings who replied, 96% authorized further contact. Median time from proband...
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