Development and pilot testing of AYA-RISE, a risk information and screening education intervention for adolescents and young adults with cancer risk syndromes.

doi:10.1007/s10689-025-00525-0

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Development and pilot testing of AYA-RISE, a risk information and screening education intervention for adolescents and young adults with cancer risk syndromes.

Familial cancer - 23 Jan 2026

Kamihara Junne, Fisher Lauren, Schienda Jaclyn, Vanderwall Rebecca, Snir Moran, Snir Guy, Simmons Emilie, Khalaj Andrew, Goler Evan, Hamilton Kayla V, Porter Christopher C, Pencheva Bojana, Schiffman Joshua D, Maese Luke D, Kohlmann Wendy, Henderson Tara O, Garber Judy E, Diller Lisa R, Desai Ami V, Savage Sarah, Klosky James L, Rana Huma Q, Mack Jennifer W

Abstract excerpt

Genetic testing is increasingly recommended for adolescents and young adults (AYAs) with cancer; however, no AYA-specific models for cancer risk communication have been developed. We developed a chatbot-based patient- and family-centered cancer risk communication tool, the AYA-RISE (AYA-Risk Information and Screening Education) intervention for AYAs aged 12–24 years.The intervention was developed together with...

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PMID: 41575674
DOI: 10.1007/s10689-025-00525-0
PMCID: PMC12830487

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