Article
A Registry Study of 240 Patients with X-Linked Agammaglobulinemia Living in the USA.
Journal of clinical immunology - 1 Aug 2023
Hernandez-Trujillo Vivian, Zhou Chuan, Scalchunes Christopher, Ochs Hans D, Sullivan Kathleen E, Cunningham-Rundles Charlotte, Fuleihan Ramsay L, Bonilla Francisco A, Petrovic Aleksandra, Rawlings David J, de la Morena M Teresa
Abstract excerpt
PURPOSE: To understand the natural history and clinical outcomes for patients with X-linked agammaglobulinemia (XLA) in the United States utilizing the United States Immunodeficiency Network (USIDNET) patient registry. METHODS: The USIDNET registry was queried for data from XLA patients collected from 1981 to 2019. Data fields included demographics, clinical features before and after diagnosis of XLA, family...
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