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A survey exploring caregiver burden and health-related quality of life in hereditary transthyretin amyloidosis

25 Jan 2023

Abstract excerpt

BACKGROUND: Hereditary transthyretin amyloidosis (ATTRv) is an ultra-rare, life-shortening disease with a high unmet need. This study examined ATTRv caregiver health-related quality of life (HRQoL) and productivity. METHODS: A cross-sectional online survey, including EQ-5D-3L, Hospital anxiety and depression scale (HADS), and caregiver and patient characteristics questions, was developed to assess ATTRv caregiver...

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PMID: 36698133
DOI: 10.1186/s13023-022-02601-5

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