Article
Psychosocial Effect of Newborn Genomic Sequencing on Families in the BabySeq Project: A Randomized Clinical Trial.
JAMA pediatrics - 1 Nov 2021
Pereira Stacey, Smith Hadley Stevens, Frankel Leslie A, Christensen Kurt D, Islam Rubaiya, Robinson Jill Oliver, Genetti Casie A, Blout Zawatsky Carrie L, Zettler Bethany, Parad Richard B, Waisbren Susan E, Beggs Alan H, Green Robert C, Holm Ingrid A, McGuire Amy L
Abstract excerpt
Importance: Newborn genomic sequencing (nGS) may provide health benefits throughout the life span, but there are concerns that it could also have an unfavorable (ie, negative) psychosocial effect on families. Objective: To assess the psychosocial effect of nGS on families from the BabySeq Project, a randomized clinical trial evaluating the effect of nGS on the clinical care of newborns from well-baby nurseries...
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