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Rapid genome‐wide sequencing in a neonatal intensive care unit: A retrospective qualitative exploration of parental experiences

1 Nov 2020

Abstract excerpt

Genome-wide sequencing (GWS) is increasingly being used in neonatal intensive care units. While studies have explored its clinical utility, little is known about parental experiences with this testing post-return of results. We conducted a qualitative study, using an interpretive description framework and thematic analysis, to gain further insight into parents' perceptions of the value and utility of GWS for...

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PMID: 33131147
DOI: 10.1002/jgc4.1353

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