Article
A new hybrid record linkage process to make epidemiological databases interoperable: application to the GEMO and GENEPSO studies involving BRCA1 and BRCA2 mutation carriers.
BMC medical research methodology - 29 Jul 2021
Jiao Yue, Lesueur Fabienne, Azencott Chloé-Agathe, Laurent Maïté, Mebirouk Noura, Laborde Lilian, Beauvallet Juana, Dondon Marie-Gabrielle, Eon-Marchais Séverine, Laugé Anthony, Noguès Catherine, Andrieu Nadine, Stoppa-Lyonnet Dominique, Caputo Sandrine M
Abstract excerpt
BACKGROUND: Linking independent sources of data describing the same individuals enable innovative epidemiological and health studies but require a robust record linkage approach. We describe a hybrid record linkage process to link databases from two independent ongoing French national studies, GEMO (Genetic Modifiers of BRCA1 and BRCA2), which focuses on the identification of genetic factors modifying cancer risk...
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