Article
Global systematic review of primary immunodeficiency registries.
Expert review of clinical immunology - 1 Jul 2020
Abolhassani Hassan, Azizi Gholamreza, Sharifi Laleh, Yazdani Reza, Mohsenzadegan Monireh, Delavari Samaneh, Sohani Mahsa, Shirmast Paniz, Chavoshzadeh Zahra, Mahdaviani Seyed Alireza, Kalantari Arash, Tavakol Marzieh, Jabbari-Azad Farahzad, Ahanchian Hamid, Momen Tooba, Sherkat Roya, Sadeghi-Shabestari Mahnaz, Aleyasin Soheila, Esmaeilzadeh Hossein, Al-Herz Waleed, Bousfiha Ahmed Aziz, Condino-Neto Antonio, Seppänen Mikko, Sullivan Kathleen E, Hammarström Lennart, Modell Vicki, Modell Fred, Quinn Jessica, Orange Jordan S, Aghamohammadi Asghar
Abstract excerpt
INTRODUCTION: During the last 4 decades, registration of patients with primary immunodeficiencies (PID) has played an essential role in different aspects of these diseases worldwide including epidemiological indexes, policymaking, quality controls of care/life, facilitation of genetic studies and clinical trials as well as improving our understanding about the natural history of the disease and the immune system...
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