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A window into living with an undiagnosed disease: illness narratives from the Undiagnosed Diseases Network

17 Apr 2017

Abstract excerpt

BACKGROUND: Patients' stories of their illnesses help bridge the divide between patients and providers, facilitating more humane medical care. Illness narratives have been classified into three types: restitution (expectation of recovery), chaos (suffering and loss), and quest (unexpected positive effect from illness). Undiagnosed patients have unique illness experiences and obtaining their narratives would...

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PMID: 28416019
DOI: 10.1186/s13023-017-0623-3

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