Article
Landscape of MS patient cohorts and registries: Recommendations for maximizing impact.
Multiple sclerosis (Houndmills, Basingstoke, England) - 1 Apr 2018
Bebo Bruce F, Fox Robert J, Lee Karen, Utz Ursula, Thompson Alan J
Abstract excerpt
BACKGROUND: There is a growing number of cohorts and registries collecting phenotypic and genotypic data from groups of multiple sclerosis patients. Improved awareness and better coordination of these efforts is needed. OBJECTIVE: The purpose of this report is to provide a global landscape of the major longitudinal MS patient data collection efforts and share recommendations for increasing their impact. METHODS:...
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