Discover Community Create You

Loading publication...

Noodle always counts identifier-free feature events for service operation. With your permission, Google Analytics can also estimate audience and engagement. Search text, publication identifiers, cookies, IP addresses and browser fingerprints are never included in Noodle's first-party event counters.

Privacy details

Article

The need to redefine genomic data sharing: A focus on data accessibility

28 Sept 2014

Abstract excerpt

DNAdigest's mission is to investigate and address the issues hindering efficient and ethical genomic data sharing in the human genomics research community. We conducted contextual interviews with human genomics researchers in clinical, academic or industrial R&D settings about their experience with accessing and sharing human genomic data. The qualitative interviews were followed by an online survey which...

Read the complete abstract on PubMed

Topics

Share this publication in a Topic to start or enrich a Post.

Share to Ethics in Clinical Research

Source

Methodology Data sources Editorial policy Privacy Delete account & data About Contact Helena Bioinformatics

Identifiers

PMID: 27294022
DOI: 10.1016/j.atg.2014.09.013

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 24 Oct 2026.

Related research

Semantic proximity does not establish scientific evidence. Graph snapshot: 2026-09-29.

Research trail→

Click a neighbor to travelStep 1 · 12 closest

The need to redefine genomic data sharing: A focus on data accessibilityPMID 27294022Read ↗

De-identified genomic data sharing: the research participant perspectiveSemantic proximity Read ↗

Introduction: the why and whither of genomic data sharingSemantic proximity Read ↗

The challenges of the expanded availability of genomic information: an agenda-setting paperSemantic proximity Read ↗

Open sharing of genomic data: Who does it and why?Semantic proximity Read ↗

Sharing genomic data from clinical testing with researchers: public survey of expectations of clinical genomic data management in Queensland, Australia.Semantic proximity Read ↗

A deliberative study of public attitudes towards sharing genomic data within NHS genomic medicine services in EnglandSemantic proximity Read ↗

Genes wide open: Data sharing and the social gradient of genomic privacySemantic proximity Read ↗

Genomic Research Data Generation, Analysis and Sharing - Challenges in the African SettingSemantic proximity Read ↗

The genomic data deficit: On the need to inform research subjects of the informational content of their genomic sequence data in consent for genomic researchSemantic proximity Read ↗

Data Sharing in the Post-Genomic World: The Experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO)Semantic proximity Read ↗

How Can We Not Waste Legacy Genomic Research Data?Semantic proximity Read ↗

A qualitative interview study to determine barriers and facilitators of implementing automated decision support tools for genomic data accessSemantic proximity Read ↗

⌁Select a neighboring publication to make it the new centre.