Article
The European Narcolepsy Network (EU-NN) database.
Journal of sleep research - 1 Jun 2016
Khatami Ramin, Luca Gianina, Baumann Christian R, Bassetti Claudio L, Bruni Oliviero, Canellas Francesca, Dauvilliers Yves, Del Rio-Villegas Rafael, Feketeova Eva, Ferri Raffaele, Geisler Peter, Högl Birgit, Jennum Poul, Kornum Birgitte R, Lecendreux Michel, Martins-da-Silva Antonio, Mathis Johannes, Mayer Geert, Paiva Teresa, Partinen Markku, Peraita-Adrados Rosa, Plazzi Guiseppe, Santamaria Joan, Sonka Karel, Riha Renata, Tafti Mehdi, Wierzbicka Aleksandra, Young Peter, Lammers Gert Jan, Overeem Sebastiaan
Abstract excerpt
Narcolepsy with cataplexy is a rare disease with an estimated prevalence of 0.02% in European populations. Narcolepsy shares many features of rare disorders, in particular the lack of awareness of the disease with serious consequences for healthcare supply. Similar to other rare diseases, only a few European countries have registered narcolepsy cases in databases of the International Classification of Diseases or...
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