Article
Disclosure of research results in genetic studies of Parkinson's disease caused by LRRK2 mutations.
Movement disorders : official journal of the Movement Disorder Society - 1 Jun 2015
Pont-Sunyer Claustre, Bressman Susan, Raymond Deborah, Glickman Amanda, Tolosa Eduardo, Saunders-Pullman Rachel
Abstract excerpt
With the advent of large genetic studies examining both symptomatic and asymptomatic individuals, whether and how to disclose genetic research results have become pressing questions. The need is particularly acute in the case of LRRK2 research: Movement centers worldwide are recruiting cohorts of individuals with Parkinson's disease (PD) and their family members, including asymptomatic carriers. Clinical features...
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