Discover Community Create You

Loading publication...

Noodle always counts identifier-free feature events for service operation. With your permission, Google Analytics can also estimate audience and engagement. Search text, publication identifiers, cookies, IP addresses and browser fingerprints are never included in Noodle's first-party event counters.

Privacy details

Article

The United States Alpha-1 Foundation Research Registry: Genesis, Impact and Future.

COPD - 1 May 2015

Strange Charlie, Monk Richard, Schwarz Laura, Walker Deirdre, Kumbhare Suchit, Bieko Tatsiana

Abstract excerpt

The Alpha-1 Foundation Research Registry has a long history of facilitating research studies in the United States. The current contact registry is used to invite participants to research studies. However, the next generation of individuals diagnosed with alpha-1 antitrypsin deficiency may look qu...

Read the complete abstract on PubMed

Topics

Share this publication in a Topic to start or enrich a Post.

Share to alpha 1-Antitrypsin Deficiency
Share to Genetic Testing
Share to Prevalence

Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

Share to Pulmonary Disease, Chronic Obstructive

Share to Registries

Share to Selection Bias

Share to Tobacco Smoke Pollution

Share to United States

Source

Identifiers

PMID: 25938291
DOI: 10.3109/15412555.2015.1021914

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 4 Sept 2026. Prepared record publication-25938291-2026-09-04.2. Manifest publication-graph-cohort-2026-09-04.2.

Source receipt: PubMed via Helena Literature Corpus, retrieved 4 Sept 2026.

Related research

Semantic proximity does not establish scientific evidence.

Research trail→

Click a neighbor to travelStep 1 · 12 closest

The United States Alpha-1 Foundation Research Registry: Genesis, Impact and Future.PMID 25938291Read ↗

Italian registry of patients with alpha-1 antitrypsin deficiency: general data and quality of life evaluation.Semantic proximity Read ↗

Baseline characteristics of enrollees in the National Heart, Lung and Blood Institute Registry of alpha 1-antitrypsin deficiency. Alpha 1-Antitrypsin Deficiency Registry Study Group.Semantic proximity Read ↗

The impact of smoke exposure on the clinical phenotype of alpha-1 antitrypsin deficiency in Ireland: exploiting a national registry to understand a rare disease.Semantic proximity Read ↗

Emerging genetics of COPD.Semantic proximity Read ↗

Ongoing research in Europe: Alpha One International Registry (AIR) objectives and development.Semantic proximity Read ↗

Testing Alpha-1 Antitrypsin Deficiency in Black Populations.Semantic proximity Read ↗

α1-Antitrypsin deficiency and chronic respiratory disorders.Semantic proximity Read ↗

Alpha1-antitrypsin deficiency: incidence and detection program.Semantic proximity Read ↗

Rationale and Design of the Genomic Research in Alpha-1 Antitrypsin Deficiency and Sarcoidosis Study. Alpha-1 Protocol.Semantic proximity Read ↗

Pulmonary and Hepatic Outcomes in Intermediate Alpha-1 Antitrypsin Deficiency: A TriNetX Database AnalysisSemantic proximity Read ↗

Results from a large targeted screening program for alpha-1-antitrypsin deficiency: 2003 - 2015.Semantic proximity Read ↗

A registry of patients with severe deficiency of alpha 1-antitrypsin. Design and methods. The Alpha 1-Antitrypsin Deficiency Registry Study Group.Semantic proximity Read ↗

⌁Select a neighboring publication to make it the new centre.