Article
Burden of inherited ichthyosis: a French national survey.
Acta dermato-venereologica - 1 Mar 2015
Dreyfus Isabelle, Pauwels Céline, Bourrat Emmanuelle, Bursztejn Anne-Claire, Maruani Annabel, Chiaverini Christine, Maza Aude, Mallet Stéphanie, Bessis Didier, Barbarot Sébastien, Ezzedine Khaled, Vabres Pierre, Mazereeuw-Hautier Juliette
Abstract excerpt
Moderate to severe ichthyosis is known to have a significant impact on quality of life. A French national survey was performed to describe in more detail how ichthyosis impacts the patients' lives. A questionnaire specifically dedicated to ichthyosis was distributed to patients followed in hospital expert centres or members of the French association of patients. A total of 241 questionnaires were completed and...
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