Article
Closing the loop: action research in a multimodal hereditary cancer patient conference is an effective tool to assess and address patient needs.
Journal of cancer education : the official journal of the American Association for Cancer Education - 1 Jun 2012
Espenschied Carin R, MacDonald Deborah J, Culver Julie O, Sand Sharon, Hurley Karen, Banks Kimberly C, Weitzel Jeffrey N, Blazer Kathleen R
Abstract excerpt
This paper describes the use of action research in a patient conference to provide updated hereditary cancer information, explore patient and family member needs and experiences related to genetic cancer risk assessment (GCRA), elicit feedback on how to improve the GCRA process, and inform future research efforts. Invitees completed GCRA at City of Hope or collaborating facilities and had a BRCA mutation or a...
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