Voicing the lifeworld: Parental accounts of responsibility in genetic consultations for polycystic kidney disease.

Abstract excerpt

When parents, who are carriers of or are affected by a genetic disorder, make decisions about the health risks faced by their children, there may be multiple factors to consider. These may include the medical benefits, the parents' own experiences of learning about their genetic status, and the future autonomy of the child. Health professionals face the challenge of explaining the possible burdens as well as...

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