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Article

The right not to know and preimplantation genetic diagnosis for Huntington’s disease

21 Dec 2009

Abstract excerpt

The right not to know is underappreciated in policy-making. Despite its articulation in medical law and ethics, policy-makers too easily let other concerns override the right not to know. This observation is triggered by a recent decision of the Dutch government on embryo selection for Huntington's disease. This is a monogenetic debilitating disease without cure, leading to death in early middle age, and thus is...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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Identifiers

PMID: 20026690
DOI: 10.1136/jme.2009.031047

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