Follow-up and transition practices in esophageal atresia: a review of European Reference Network on rare Inherited and Congenital Anomalies (ERNICA) centres and affiliates

Abstract excerpt

PURPOSE: The purpose of this study was to understand the provision and distribution of esophageal atresia (EA) follow-up (FU) and transition services across European Reference Network for rare Inherited and Congenital Anomalies (ERNICA) member and affiliate centers. METHODS: A REDCap questionnaire was sent to clinical leads of 18 ERNICA members and 14 affiliate centers. RESULTS: 29 of 32 centers responded (91%),...

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