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[Rare-disease data standards].

Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz - 1 Nov 2022

Robinson Peter N, Graessner Holm

Abstract excerpt

The use of standardized data formats (data standards) in healthcare supports four main goals: (1) exchange of data, (2) integration of computer systems and tools, (3) data storage and archiving, and (4) support of federated databases. Standards are especially important for rare-disease research and clinical care.In this review, we introduce healthcare standards and present a selection of standards that are...

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Identifiers

PMID: 36149471
DOI: 10.1007/s00103-022-03591-2
PMCID: PMC9636095

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-07.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

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