Article
Evaluation of tumour surveillance protocols and outcomes in von Hippel-Lindau disease in a national health service.
British journal of cancer - 1 May 2022
Maher Eamonn R, Adlard Julian, Barwell Julian, Brady Angela F, Brennan Paul, Cook Jackie, Crawford Gillian S, Dabir Tabib, Davidson Rosemarie, Dyer Rebecca, Harrison Rachel, Forde Claire, Halliday Dorothy, Hanson Helen, Hay Eleanor, Higgs Jenny, Jones Mari, Lalloo Fiona, Miedzybrodzka Zosia, Ong Kai Ren, Pelz Frauke, Ruddy Deborah, Snape Katie, Whitworth James, Sandford Richard N
Abstract excerpt
BACKGROUND: Von Hippel-Lindau (VHL) disease is an inherited tumour predisposition syndrome and a paradigm for the importance of early diagnosis and surveillance. However, there is limited information on the "real world" management of VHL disease. METHODS: A national audit of VHL disease in the United Kingdom. RESULTS: VHL disease was managed mostly via specialist clinics coordinated through regional clinical...
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