Article
Development of decision aids for female BRCA1 and BRCA2 mutation carriers in Germany to support preference-sensitive decision-making.
BMC medical informatics and decision making - 5 Jun 2021
Kautz-Freimuth Sibylle, Redaèlli Marcus, Rhiem Kerstin, Vodermaier Andrea, Krassuski Lisa, Nicolai Kathrin, Schnepper Miriam, Kuboth Violetta, Dick Julia, Vennedey Vera, Wiedemann Regina, Schmutzler Rita, Stock Stephanie
Abstract excerpt
BACKGROUND: Women with pathogenic BRCA1 and BRCA2 mutations possess a high risk of developing breast and ovarian cancer. They face difficult choices when considering preventive options. This study presents the development process of the first decision aids to support this complex decision-making process in the German healthcare system. METHODS: A six-step development process based on the International Patient...
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