Article
Cystic fibrosis in Turkey: First data from the national registry.
Pediatric pulmonology - 1 Feb 2020
Dogru Deniz, Çakır Erkan, Şişmanlar Tuğba, Çobanoğlu Nazan, Pekcan Sevgi, Cinel Güzin, Yalçın Ebru, Kiper Nural, Şen Velat, S Şen Hadice, Ercan Ömür, Keskin Özlem, B Eltan Sevgi, Al Shadfan Lina M, Yazan Hakan, Altıntaş Derya U, Şaşihüseyinoğlu Şenay, Sapan Nihat, Çekiç Şükrü, Çokuğraş Haluk, A Kılınç Ayşe, R Gürsoy Tuğba, Aslan Ayşe T, Bingöl Ayşen, Başaran Abdurrahman E, Özdemir Ali, Köse Mehmet, Hangül Melih, Emiralioğlu Nagehan, Tuğcu Gökçen, Yüksel Hasan, Yılmaz Özge, Orhan Fazıl, Gayretli Aydın Zeynep G, Topal Erdem, Tamay Zeynep, Süleyman Ayşe, Can Demet, Bal Cem M, Çaltepe Gönül, Özçelik Uğur
Abstract excerpt
BACKGROUND: Cystic fibrosis (CF) care has been implemented in Turkey for a long time; however, there had been no patient registry. For this purpose, the Turkish National CF Registry was established. We present the first results of registry using data collected in 2017. METHODS: The data were collected using a data-entry software system, which was accessed from the internet. Demographic and annually recorded data...
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