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Boosting care and knowledge about hereditary cancer: European Reference Network on Genetic Tumour Risk Syndromes

9 Oct 2018

Abstract excerpt

Approximately 27-36 million patients in Europe have one of the ~ 5.000-8.000 known rare diseases. These patients often do not receive the care they need or they have a substantial delay from diagnosis to treatment. In March 2017, twenty-four European Reference Networks (ERNs) were launched with the aim to improve the care for these patients through cross border healthcare, in a way that the medical knowledge and...

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PMID: 30302652
DOI: 10.1007/s10689-018-0110-6

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