The development of an online decision aid to support persons having a genetic predisposition to cancer and their partners during reproductive decision-making: a usability and pilot study.

doi:10.1007/s10689-018-0092-4

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The development of an online decision aid to support persons having a genetic predisposition to cancer and their partners during reproductive decision-making: a usability and pilot study.

Familial cancer - 1 Jan 2019

Reumkens Kelly, Tummers Marly H E, Gietel-Habets Joyce J G, van Kuijk Sander M J, Aalfs Cora M, van Asperen Christi J, Ausems Margreet G E M, Collée Margriet, Dommering Charlotte J, Kets C Marleen, van der Kolk Lizet E, Oosterwijk Jan C, Tjan-Heijnen Vivianne C G, van der Weijden Trudy, de Die-Smulders Christine E M, van Osch Liesbeth A D M

Abstract excerpt

An online decision aid to support persons having a genetic predisposition to cancer and their partners during reproductive decision-making was developed. A two-phase usability test was conducted among 12 couples (N = 22; 2 persons participated without their partner) at risk for hereditary cancer and 15 health care providers. Couples and health care providers expressed similar suggestions for improvements, and...

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PMID: 29846879
DOI: 10.1007/s10689-018-0092-4
PMCID: PMC6323089

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