Article
Medical Attitudes Survey for Female Dystrophinopathy Carriers in Japan.
Internal medicine (Tokyo, Japan) - 15 Aug 2018
Kobayashi Michio, Hatakeyama Tomoyuki, Ishizaki Masatoshi, Adachi Katsuhito, Morita Mizuki, Yonemoto Naohiro, Matsumura Tsuyoshi, Toyoshima Itaru, Kimura En
Abstract excerpt
Objective This study attempted to clarify the current status of female dystrophinopathy carriers, including the numbers of patients, the status of genetic screening, the status of counseling, physicians' understanding, and barriers to registration. Methods We sent out questionnaires to 402 physicians registered in the Remudy dystrophinopathy registry. The total number of responses received was 130 (response rate:...
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