Article
A National Registry of Thalassemia in Turkey: Demographic and Disease Characteristics of Patients, Achievements, and Challenges in Prevention.
Turkish journal of haematology : official journal of Turkish Society of Haematology - 1 Mar 2018
Aydınok Yeşim, Oymak Yeşim, Atabay Berna, Aydoğan Gönül, Yeşilipek Akif, Ünal Selma, Kılınç Yurdanur, Oflaz Banu, Akın Mehmet, Vergin Canan, Sezgin Evim Melike, Çalışkan Ümran, Ünal Şule, Bay Ali, Kazancı Elif, İleri Talia, Atay Didem, Patıroğlu Türkan, Kahraman Selda, Söker Murat, Akcan Mediha, Akdeniz Aydan, Büyükavcı Mustafa, Alanoğlu Güçhan, Bör Özcan, Soyer Nur, Özdemir Karadaş Nihal, Uysalol Ezgi, Türker Meral, Akçay Arzu, Ocak Süheyla, Güneş Adalet Meral, Tokgöz Hüseyin, Ünal Elif, Tiftik Naci, Karakaş Zeynep
Abstract excerpt
OBJECTIVE: The Turkish Society of Pediatric Hematology set up a National Hemoglobinopathy Registry to demonstrate the demographic and disease characteristics of patients and assess the efficacy of a hemoglobinopathy control program (HCP) over 10 years in Turkey. MATERIALS AND METHODS: A total of 2046 patients from 27 thalassemia centers were registered, of which 1988 were eligible for analysis. This cohort mainly...
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