Article
"When information is not enough": A model for understanding BRCA-positive previvors' information needs regarding hereditary breast and ovarian cancer risk.
Patient education and counseling - 1 Sept 2017
Dean Marleah, Scherr Courtney L, Clements Meredith, Koruo Rachel, Martinez Jennifer, Ross Amy
Abstract excerpt
OBJECTIVE: To investigate BRCA-positive, unaffected patients' - referred to as previvors - information needs after testing positive for a deleterious BRCA genetic mutation. METHODS: 25 qualitative interviews were conducted with previvors. Data were analyzed using the constant comparison method of grounded theory. RESULTS: Analysis revealed a theoretical model of previvors' information needs related to the stage...
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