The international primary ciliary dyskinesia cohort (iPCD Cohort): methods and first results.

doi:10.1183/13993003.01181-2016

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Article

The international primary ciliary dyskinesia cohort (iPCD Cohort): methods and first results.

The European respiratory journal - 1 Jan 2017

Goutaki Myrofora, Maurer Elisabeth, Halbeisen Florian S, Amirav Israel, Barbato Angelo, Behan Laura, Boon Mieke, Casaulta Carmen, Clement Annick, Crowley Suzanne, Haarman Eric, Hogg Claire, Karadag Bulent, Koerner-Rettberg Cordula, Leigh Margaret W, Loebinger Michael R, Mazurek Henryk, Morgan Lucy, Nielsen Kim G, Omran Heymut, Schwerk Nicolaus, Scigliano Sergio, Werner Claudius, Yiallouros Panayiotis, Zivkovic Zorica, Lucas Jane S, Kuehni Claudia E

Abstract excerpt

Data on primary ciliary dyskinesia (PCD) epidemiology is scarce and published studies are characterised by low numbers. In the framework of the European Union project BESTCILIA we aimed to combine all available datasets in a retrospective international PCD cohort (iPCD Cohort).We identified eligible datasets by performing a systematic review of published studies containing clinical information on PCD, and by...

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PMID: 28052956
DOI: 10.1183/13993003.01181-2016
PMCID: PMC5298195

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