Article
Attitudes Toward Discussing Approved and Investigational Treatments for Cystic Fibrosis in Prenatal Genetic Counseling Practice.
Journal of genetic counseling - 1 Feb 2017
Elsas Caroline Rung, Schwind Elinor Langfelder, Hercher Laura, Smith Michael J, Young Kara Gardner
Abstract excerpt
This project aimed to explore the attitudes of prenatal genetic counselors toward discussion of novel approved and experimental CF treatments in the prenatal setting, and to assess how knowledge of genotype-specific, targeted treatments may influence their current practices. Targeted treatments have the potential to impact the health-related quality of life of individuals affected with CF and therefore, knowledge...
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