Article
Whole-Genome Sequencing and Disability in the NICU: Exploring Practical and Ethical Challenges.
Pediatrics - 1 Jan 2016
Deem Michael J
Abstract excerpt
Clinical whole-genome sequencing (WGS) promises to deliver faster diagnoses and lead to better management of care in the NICU. However,several disability rights advocates have expressed concern that clinical use of genetic technologies may reinforce and perpetuate stigmatization of and discrimination against disabled persons in medical and social contexts. There is growing need, then, for clinicians and...
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