Article
Genetic education and sickle cell disease: feasibility and efficacy of a program tailored to adolescents.
Journal of pediatric hematology/oncology - 1 Oct 2014
Porter Jerlym S, Matthews Christy S, Carroll Yvonne M, Anderson Sheila M, Smeltzer Matthew P, Hankins Jane S
Abstract excerpt
Sickle cell disease (SCD) genetic knowledge is important when individuals make reproductive decisions. This study assessed feasibility and efficacy of delivering basic genetic information to 101 adolescents with SCD. Participants completed a questionnaire to test SCD genetic knowledge at 3 timepoints: before genetic education session (pretest), after the session (posttest), and 6 months later (follow-up). Scores...
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